January 2021 Round Up

A belated Happy New Year to you all! What are you all hoping for this coming year?

Daisy (2 Months Old)

Photo of Daisy on her superhero themed milestone blanket, with a red caption shape around the number 2 and another shape around the word months

A New Symptom?

Not ‘New Year, New Me’ but instead ‘New Year, New Symptom’! Well, not new as such, I’ve experienced it a lot in the past but I finally figured out what it is.

It’s linked to my hearing loss, along with tinnitus I sometimes hear this swooshing noise, once every so often. When it happened for the first time this year, it bought on a headache and made me feel a bit sick.

I was desperate for some sort of relief, and tried different movements and positions with my head. I came to realise that moving my head was making the swooshing noise worse.

So, I tried closing my eyes and moving my head… at last the noise wasn’t intense! I cherished those few seconds of peace until I opened my eyes and the noise began again. Ugh!

I eventually realised that the whooshing noise was made worse when I had my eyes open and moved them in any direction. It wasn’t due to my head movement. The only relief was looking at something, then closing my eyes, turn my head, then open my eyes. What a palaver!

Its interesting to learn new ways of draining my energy… not!

Basically, I can hear my eyeballs move. Which fascinates me, yet disgusts me at the same time. I will speak to my consultant at my next appointment about this.

The Breakdown

My first contribution to an article of this year! In this article, Do You Suffer From Chronic Nightmares? You’re Not Alone, I briefly talk about the nightmares I experience on a regular basis, and the impact they have on me. Its the first time I’ve spoken publicly about them, it wasn’t easy.

I had to take several breaks when writing my answers because it did upset me at times, depending on which part I was writing. However, it was a topic I wanted to contribute to and raise awareness.

Metro

I also had the amazing opportunity of being featured in The Metro, a UK newspaper! This was a first for me, and very surreal. Never did I think I would be able to have my story (not the full version, of course) published in a newspaper.

The initial intention of the article was to raise awareness of my disabilities, Sensory Ataxia, Transverse Myelitis, hearing loss, central vision loss and Mitochondrial Disease. However, the article explores many aspects of what I’ve been through within the last 3 years.

Ranging from my health deteriorating, to my 9-month hospital and rehabilitation stay, the stigma I’ve endured and being pregnant with Daisy. I feel very thankful to have had this opportunity!

You can read the article here, Mum Shuts Down Idea You Can’t Be A Good Parent When You’re Chronically Ill or Disabled.

My Birthday

On the 23rd, I turned 26! I was spoilt very much, I received a Loki hoodie, a Loki t-shirt, a Tom Hiddleston pillow, another Loki t-shirt, a poster of Loki quotes, a necklace, a sarcastic t-shirt and a Tom Hiddleston pillowcase.

Some might say I had a low-key birthday… get it? Did you get it? Yeah, don’t worry, I rolled my eyes too.

I did also receive lots of birthday messages and cards too, which was lovely. But the best thing of all, was lots of Daisy cuddles and kisses!

COVID Vaccine

How could I forget this, the NHS also thought of me on my birthday as I received my first dose of the COVID vaccine! I know it was just the timing but I was just trying to make it light-hearted.

The side effects were not so pleasant, at first I was afraid, I was petrified… no, in all honesty I felt fine. Until the evening when my arm began aching, I felt very cold and couldn’t get warm – but to be fair, it was freezing that day!

I felt under the weather for a couple of days, but it was the horrible ache in my arm that really got me. There were points where it was so painful, I couldn’t move it. I will have the next dose in April.

Tip: Don’t have the jab in your most used arm. This is just my advice, of course its entirely up to you.

A Mother’s Diary

For once, I actually kept to my word and published the first entry of a new section on my blog, A Mother’s Diary. Albeit the day before the end of January, but still I did it!

Anyhoo, in A Mother’s Diary – Entry 01, I talk about why I struggled to feel like I was Daisy’s mummy, explaining more about the baby blues and why it affected me so much. Also, I share with you the moment I finally realised and actually felt like a Mummy.

It was another piece which wasn’t easy to write but I’m pleased with how it turned out. As I mentioned, when I introduced the series, these entries will be sporadic.

What’s Happening in February?

I will be writing a guest blog for Scope which should be published at the end of the month, I’m going to ask if I can write another guest blog because I’d like to raise awareness about both topics.

I’m really hoping to buy a laptop in the near future, I’m currently doing a lot of research as I need to find one which will suit my needs.

It will be a year since I had my last physiotherapy session at rehab, I really hope I can return to sessions when things settle.

How was your month?

– Ami πŸ’š

23 thoughts on “January 2021 Round Up

  1. Congratulations on The Metro. And the birthday Covid vaccination. I got mine too. Felt a little rough for a couple of days but nothing that would put me off having it again.
    I love the little milestone blanket thing you have for Daisy!

    Liked by 1 person

      1. Absolute pleasure – l had another thought – when you made that joke, did you hear your eyeballs swoosh when you rolled them?

        Just wondering … l read that and blinked several times jumped up and down and then rolled my head across the desk .. nope, couldn’t make them swoosh!!

        You could be onto a gold earner there Shirley … you could become “The Eyeball Seer!” Did you see’r what l did there or did that swoosh by you …. πŸ™‚

        Or maybe ‘Shirley La Shoosher!’

        Liked by 1 person

      2. You make me chuckle Bruce πŸ˜„ eye-ronically they didn’t make the swooshing sound. Eye did see what you did there πŸ™‚ Shirley La Shoosher/Swoosher is quite a mouthful!

        Liked by 1 person

  2. Happy Belated Birthday!
    Also, I know I’ve said this before but your daughter is adorable.
    I’m happy to hear people I know are starting to get vaccines. Do you have the second vaccine scheduled yet?

    Liked by 1 person

  3. I have tinnitus and major hearing loss in my right ear. I am practically deaf in that ear… my ears cannot filter out loud noises (was born that way). If there is a cure for tinnitus, please let me know. I hear buzzing/ringing in my right ear 24/7 and am desperate for some relief!

    Btw, happy belated birthday! πŸ₯³πŸŽ‚

    Liked by 2 people

    1. Ami and Hilary, a few years back I learned that tinnitus can be exacerbated by magnesium deficiency. If there’s an ability to take magnesium. My doctor told me to take it and I definitely don’t recommend taking it without asking advice of the right people (doctors, nurses, naturopaths, whomever it is you get your advice from). I will say though that it made a world of difference for me.

      Liked by 2 people

      1. Thank you for sharing V, I’d not heard (ironically) about it related to magnesium deficiency, I will definitely ask about it at my next appointment πŸ’š

        Like

      2. This is fantastic advice, V!! πŸ€— I didn’t realize how much of a different a magnesium supplement could make, and I am seriously considering a magnesium citrate powder to help with the tinnitus. Natural Calm would send me these extra sample packets of magnesium citrate with my orders, and I never thought much of them until now. I am thinking about ordering a bunch of them with my next order. The melatonin supplement I take also has magnesium and I find that whenever I take the supplement, the tinnitus is not nearly as bad the next day. I will definitely be looking into this. Thank you! β™₯

        Liked by 1 person

  4. Thanks for the update Ami. Happy belated birthday. Thanks for the arm tip for the vaccine and good luck with the computer search. I have had my iPad for 10 years and that was recommended to me by a visual impairment specialst because of the accessibility options. I have an Apple MacBook Air 2020 that is my laptop. VoiceOver is a great tool available on both and it reads out everything on the screen. I get through so many books as it reads them too. On the Mac there is Hover Text that enlarges text and you can pick the colour/size you want for that. Can’t recommend these products enough.

    Liked by 1 person

    1. Thanks Katherine 😊 I have a Samsung Galaxy Tab A (2018) which is fantastic, the Apple products do look impressive however the price tag is a different story! πŸ’š

      Like

      1. You’re welcome Ami. I know what you mean about Apple. I was lucky enough to get mine as birthday/Christmss gifts. I’m in need of another tablet so I’ll check out the Samsung ones too, I heard they are good for accessibility options too. Keep the great posts coming. I’m loving all your updates and news, Hoping you get to see a specialist soon.

        Liked by 1 person

  5. The eyeball noise thing sounds like a rather creepy experience.

    That’s awesome about The Breakdown and The Metro! And sounds like a rather fabulous birthday haul. Look at you kicking ass with this mum life!

    Liked by 1 person

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