On The Waiting List
I mentioned in my goals for 2021 that I hope to get a new powerchair as my current one is no longer best suited for me. When Mum phoned Wheelchair Services, she was told I was still on their records therefore I was able to be put on the waiting list without my GP needing to refer me. Woo! Can’t wait to be assessed!
Daisy (4 Months Old)
3 Years Since I Was Hospitalised
3 years… and it still feels like it was only yesterday. I was reflecting from the 4th to the 11th, as I usually do each year since it happened. I’ve come to the conclusion that I have achieved far more in the past 3 years, than I have in my 23 years of being able-bodied. However, I’m actually quite hard on myself because I’m always wanting to achieve more, despite my body telling my to stop and rest.
I think this is mainly due to grieving the years I wasted not doing anything, not chasing after my dreams as such. For me, the acceptance process really does pique my interest, albeit it can be draining, both physically and mentally.
3 Years & 1 Year
11th March marked 3 years since I woke up from my medically induced coma Plus, it also marks 1 year since Ewan and I found out that we were having a baby; a very poignant day indeed.
A New Hobby?
I have been yearning to find a new hobby, something that would involve my hands. I used to love drawing, crosswords, any word puzzles really, just something to do physically do with my hands instead of doing everything on my tablet. So, what would you suggest to someone who has poor co-ordination, poor grip/fine-motor skills, and has a vision impairment~?
… and what design did I go for first? A big Disney design, but the memo I failed to read was the bigger the picture, the more diamonds there are and the more detailed it is. So, after 2 attempts, I got frustrated with it, cried and told Ewan to get rid of it.
I had another look on Amazon to find a much easier design and I was very excited to find little Marvel characters! Just got to find the time to try one, I will upload a photo of one or two, or however many I can complete in next month’s round up.
Update – Nope, tried the new designs I got and just couldn’t enjoy them, so I am sending them to a friend.
Any ideas for a hobby I could try?
Enable is the UK’s leading disability and lifestyle magazine. I saw the opportunity posted on Scope’s online community that a magazine was looking to speak to disabled women who were pregnant. However, it didn’t say anything about disabled people having a baby within the last few months or so, therefore I was hesitant about finding out more but I thought I would ask anyway.
A member of Scope gave me the email address to their press office to see what they thought. They checked with the magazine editor and, fortunately, came back to me with a yes! Moral of the story – you don’t know unless you ask.
Anyway, I’m rambling as usual. I was asked some questions about being disabled and pregnant, adapting to motherhood and my hopes for Daisy. If you’re not interested in reading the article, that’s fine I won’t tempt you with the fact there are a few adorable photos of Daisy included… hehe.
The last few weeks have been really challenging, both physically and mentally. I’m not sure what happened to trigger a rollercoaster of emotions, it was rather abrupt. You’d automatically assume sleep deprivation would be because of Daisy, right? Well, it actually isn’t.
I’ve only recently realised that I go through phases of being able to cope with everything that’s wrong with me, and then I hit rock bottom and have no idea with how to cope. But this has been the longest bout of feeling like i can’t cope, and it’s just been plain awful.
I haven’t gone into detail on my blog yet about what it was life being stripped bare of almost everything when my health deteriorated. There were so many things I loved doing, and I can’t do any of them now. It hurts. It really hurts.
A couple of other things have been happening, which I don’t want to talk about so openly just yet. So, that’s added more stress and it’s all been affecting my sleep. I don’t usually get to sleep until 3 or 4am, therefore I nap during the day and it buggers up my whole sleep routine.
It got so bad that I began hallucinating the other morning, which was really scary. Enough was enough so I asked Mum to ring my GP to see if I could be prescribed some sleeping tablets; which would hopefully be better than the last ones. Fingers crossed they work, and I will let you know how I get on with them.
I don’t know why but I keep wanting to say chiropractor… but it’s not the same, vastly different for that matter!
I find it difficult to to complete personal care needs due to my Sensory Ataxia and Transverse Myelitis; in this instance, foot care.
I’ve never had a chiropodist tend to my feet before so this was something completely new for me. I was hesitant at first as my feet are over-sensitive, plus because of my involuntary movements, I didn’t want my foot to kick this person in the face.
Anyway, Mum booked an appointment for me and the chiropodist came round on Tuesday just gone. Wearing the appropriate PPE, she set to work within minutes.
I was pleased that she didn’t automatically put too much pressure on my feet, instead she lightly massaged my feet (with socks on) so that I could get used to the sensation. This really did help!
Socks off, then she started on my nails, which haven’t been in the best state for years. She cleaned them, trimmed them, smoothed the nails, removed any dead skin and moisturised my feet.
It was absolutely lovely and I can’t wait to book another appointment!
What’s Happening in April?
‘The Reality of…’ series is resuming on Friday 2nd April, which I’m really excited about!
I have my second dose of the Covid jab in just under 2 weeks, plus my first hospital appointment in-person at Addenbrooke’s.
I’m planning on giving my blog a revamp, but I’m not sure if I want to go self-hosted. I’m also thinking about getting a new logo, do you have any recommendations? Thanks in advance!
– Ami 💚