Happy Halloween superheroes!
A Good Physio Session
My first physio session as a married woman! In this session, my posture was really good and I was able to control my Ataxia a lot more than usual, that’s never happened before! But I felt it as soon as I got into the car to go home!
Up, Up & Up!
On the same day as I had physio, the stair-lift was finally installed!! I had not been upstairs for 21 months. Wow! You can imagine my disappointment when I reached the top of the stairs, only to realise the stair-lift was too high off the floor.
Yeah… not a happy bunny!
It took a lot of practising but I’m now completely comfortable with using the stair-lift! So, in the near future, expect more photos and videos of Loki & Thor, and god knows what else!
The Reality of…
Wendy briefly tells us what its like living with Premenstrual Dysphoric Disorder and Sensory Processing Disorder.
“Daily life is spent trying to decode my body’s alarm system that interprets almost all sensory input as a painful emergency. Sensory overload results in meltdowns and an inability to function.”
The F Word
With the wedding over with, my mood quickly went downhill. I felt like I was in my element throughout the planning process. If you’ve been following me on my recovery journey, then you will know that walking down the aisle was THE goal.
I achieved it and then realised I no longer have anything to aim for. The F Word is purely me venting, it helps to write about how I feel,
What I’ve Learned in My First Year of Blogging
I still can’t believe it’s been 1 year since I started blogging! I don’t know where I would be without UndercoverSuperhero or the blogging community!
In What I’ve Learned in My First Year of Blogging, I admit to a few bad habits and share the lessons I have learned.
Here’s to many more years!
Had A Shower!
If you’re new to following my blog, then you’re probably thinking ‘Why is that something to shout about?’
Well, since I was discharged from rehab, back in November 2018, I’ve not been able to have a shower in my own home due to applying for a DFG (Disabled Facilities Grant), being assessed for it, waiting for it to be processed, choosing contractors, contractors coming out to assess the home, waiting 1 month for it all to be processed.
The new bathroom was done within a week of starting, but had to wait for the stair-lift, new commode and new Ross Return to be delivered.
So, finally, I can have a shower in my own home! Woohoo!
For quite a few reasons, which I will explain in a future post, I wanted to write about my story in more depth. It’s been a long journey, but I’m getting there slowly!
If you would like to read about how I became disabled and my ongoing journey to recovery, please start from The Beginning.
“Towards the end of March 2017, I woke up one morning with blurry central vision, I didn’t think nothing of it as I assumed it was because I had just woken up. When I went into work, I felt different – I couldn’t put my finger on what it was, but I tried to carry on as normal throughout my shift.”
The Importance of Mobility Aids
Earlier this year, I wanted to write about The Importance of Mobility Aids to try and tackle the stigma of mobility aids being seen as a negative rather than a positive.
I, along with Chloe, Hannah, Miranda and Arabella, talk about how our mobility aids have had a huge impact on our lives.
Debt Paid Off!
Since September 2017, I had been claiming PIP (Personal Independence Payment) and with everything that happened during March and the months thereafter, it wasn’t the first thing that came to Mum’s mind to notify them that I had been in hospital for a long period.
By the time we found out that they needed to be notified for more than 28 days, it was near 4 months. So, I ended up owing them just over £2000.
Thankfully, I’ve paid the debt off now!
So people, if you claim PIP, its 28 days that they need to be notified that you have stayed in hospital, NOT 28 WEEKS!
The Beginning of The End
Next part of my journey, The Beginning of The End.
“I wanted to lash out and scold myself because I was incredibly frustrated. No doubt, whatever was wrong, would be my fault. Everything always was my fault.”
Happy 1st Birthday!
UndercoverSuperhero turned 1 on the 10th of October! So excited to see how my blog evolves!
To the Point of No Return
Next part of my journey, To the Point of No Return.
“I took the first tablet at around teatime, my instinct, when I first saw the capsule, was telling me that something bad was going to happen if I take this – despite being reassured it was safe to take. I reluctantly took the tablet.”
As I mentioned earlier, I’d not been upstairs in 21 months which also meant that I had not slept in mine and Ewan’s bed for that long. Its lovely to finally cuddle and fall asleep in his arms again!
Was This Going To Be My Last Christmas?
Next part of my journey, Was This Going To Be My Last Christmas?
“The first time he tested, no change apart from increasing the volume of the background noises. Second time, no change. Third, nothing. After a few more attempts, it was clear that hearing aids would not work for me.”
The beautiful Jazz, from Another Bipolar Blogger, is taking part in Blogtober – it’s a challenge for bloggers where they try to write content each day throughout October.
Jazz very kindly included me in her 11th post, which is a list of her favourite bloggers, thank you lovely!
The Week From Hell
Next part of my journey, The Week From Hell.
“I also prayed, that if nothing would become of my time being here, then I hoped I wouldn’t suffer much longer. I wanted to be free of pain and misery.”
I’ve Been Nominated For A Scope Award!
I’m still pinching myself about this! I received a letter, a couple of weeks ago, to tell me that I’ve been nominated for the ‘Gamechanger Award’ within Scope’s Volunteer Awards!
I cried when I finished reading the letter, I love being a part of Scope and the online community means the absolute world to me! I’d never thought I would ever be nominated for something like this, so I’m still pretty speechless about it!
I feel very thankful to have been nominated!
I Knew Something Wasn’t Right
Next part of my journey, I Knew Something Wasn’t Right.
“Once I had been sick, I did feel more myself. I don’t remember any noticeable changes or showed any other symptoms. Although, I remember falling asleep at lunchtime on the Sunday.”
The Last Time
Next part of my journey, The Last Time.
“I started to panic again, and Mum tried to calm me down as my heart rate was going up and up, which then caused me to struggle even more to breathe. I really tried to calm down but I didn’t have any idea as to what was happening.”
Nobody Will Know I’m Here
Next part of my journey, Nobody Will Know I’m Here.
“I was so relieved when I saw Ewan walk up to my bed, but he was wearing the t-shirt I had got him for his birthday, so that answered my question. I had missed his birthday.”
My Time in Intensive Care
Next part of my journey, My Time in Intensive Care.
“I remember being more unsettled at night, I think the loneliness hit me hard. I got so frustrated one night, that I was violently shaking the bed guard. I wanted to go home, I still didn’t understand clearly all that happened. Why did I have no energy? Why couldn’t I sit up by myself?”
Had A Good Catch-Up
Before a physio session, and after, I got to catch up with my favourites! My old PT, Grace and 2 rehab assistants. It was the first time I had seen them since the wedding, so we were looking through the wedding photos and videos, and having a laugh.
I love seeing these 4, I’m still finding it hard not being able to see them as much as I used to.
Sophie is like my twin sister, we look nothing alike but we are like two peas in a pod. She does have her moments where I end up laughing so much I cry! I’m the ugly duckling to her swan!
Grace is like a wise sister (No, I don’t mean old!). She’s taught me so much, not just because it was her job, but she taught me to be more resilient and speak up when I need to. I wouldn’t have wanted to go wedding dress shopping with anyone else.
Erica, my rehab mum, she has always been there when I needed a hug, or when I just wanted to talk. She loves Westlife, just like me, and she’s just got a heart of gold.
My PT, I’m torn between saying he’s a good friend and the brother I’ve always wanted. We can never talk seriously without having a bit of banter. He’s a protective guy, but in a caring way. He has been a massive part of my recovery and I guess that’s why he means a lot to me.
Getting a bit sentimental there, but seriously I can’t imagine my life without them now.
“You Don’t Look Blind/Disabled” – Addressing the Stigma
Elin, from My Blurred World, has a vision impairment, and ever since she began blogging she has raised awareness of living with Retinitis Pigmentosa and breaking down misconceptions of having a disability.
She asked, on Twitter, if people have experienced comments, from others, such as, “You don’t look blind”, or “You don’t look disabled”.
I shared my experience, with many others, who are vision-impaired and it was a astounding to read just how many of us have experienced stereotypical comments.
My Time in Intensive Care: Part 2
Next part of my journey, My Time in Intensive Care: Part 2.
“A couple of days later, Mum and Jill came to see me. I was feeling really low and anxious that day. A nurse administrated some medication that would, hopefully, calm me down. Within seconds, I suddenly started to feel like I was vibrating, which terrified me. I quickly tried to get it across to everyone that I really didn’t feel right.”
The Reality of…
Aileen talks about living with Spina Bifida, Chronic Pain and Nerve Damage, and adapting to a positive mindset.
“I often feel angry and upset by this and feel that I have been dealt an unkind blow at the hands of the surgeon, but then I remember that I have a lot to be thankful for and try to concentrate on what I “can do” rather than on what I “can’t do” now”.
24th October marked 3 years since our first family dog, Millie, was put to sleep. Millie was my everything, I tried my best to protect her, and she always protected me. Growing up, we had been through hell together.
Knowing that she’s chasing pheasants, and they would always fly off before she got near them, and eating DentaStix and Bonio’s across the Rainbow Bridge makes me smile.
Millie will always be in my heart.
The Reality of…
Barbara shares her story of the onset symptoms, receiving a diagnosis, and living with Transverse Myelitis.
“I still had sensory disturbance, neuropathic pain, some fatigue, and didn’t have full sensory awareness in my hands anymore.”
Raising Awareness of Raynaud’s with HuffPost
October is Raynaud’s Awareness Month and I reached out to a writer, at HuffPost, who was looking for people, who have Raynaud’s, to answer a few questions about our symptoms and treatment. You can read the article here.
Learning to Breathe Again: Part 1
Next part of my journey, Learning to Breathe Again: Part 1
“This was the first session where I tried to sit up, with 3 physio assistants. This was also the first session where I realised, I couldn’t sit up by myself without a lot of support.“
I’ve Been Nominated for The Real Neat Blog Award!
The beautiful Amy, from Sassy Cat Lady, kindly nominated me for The Real Neat Blog Award, I’m excited as this is my first nomination for this award! Woohoo! Thank you Amy!
The Reality of…
Amy also shares how she has learned to manage her OCD, Anxiety and IBS.
“Since having 6 months of high intensity CBT, I feel as though I’m better equipped to deal with not only my mental health issues, but also my IBS.”
Planning An Accessible Hen-Do
How to Plan an Accessible Hen Do is my latest article with Magpie Wedding. The whole process of it caused me so much stress that I ended up cancelling it. In the article, I share my experience and, mainly, frustrations of trying to find an activity which was best suited to me.
The Reality of…
Savannah candidly tells us about her battle, and conquering her anxiety.
“I spent the first twenty three years of my life without speaking. Frozen so stiffly in fear that I lost major range of motion in my neck.”
Well bugger me, this month did start out quite quiet, but instead its ended jam-packed! I apologise for not sharing more wedding photos, as you can see it’s been a busy month! Hopefully, I will share them before Christmas!
What’s Happening in November?
Fuck knows! Just kidding, there will be more guest posts in ‘The Reality of…’ series, more new food challenges.
I will continue writing about my battle with ill health too.
I’ve got my 6 month check up with my neurologist, so will see how that goes.
The 29th of November marks 1 year since I was discharged – can’t believe how fast time has flown by! I will be writing about the highlights of the year too.
What have you been up to this month? Got much planned in November?